Showing posts with label chronic illness. Show all posts
Showing posts with label chronic illness. Show all posts

Tuesday, June 18, 2013

All or Nothing

I've been going through the book of Matthew in the mornings, and one of the stories just popped out at me today. Matthew mentions a woman in chapter 9 that had been suffering for 12 years with a blood discharge that had been incurable. In her context, chronic bleeding would have made her "unclean" and she would have been excluded from normal social and religious functions.

Sickness and isolation.

12 long years. Then, we read in the other Gospels that she had spent her wealth going to different physicians who tried unsuccessfully to find a cure. Can you imagine how hopeless her situation was?

After bleeding for 12 years, I can't help but think that this woman was surely anemic at this point.

The fatigue that anemia brings feels like hundred pound weights attached to every part of your body where doing absolutely anything is exhausting.

When I was at my worst, I couldn't sit up in a chair. It was too exhausting. I lost my drive to do anything, and resting was still tiring. During those down days, I didn't go anywhere, because I knew I wouldn't have the energy and strength to get back from my destination. It was isolating and felt hopeless.

Photo by Ruth Livingstone courtesy of stock.xchng
I relate to this woman. I am so thankful that God spared me 12 years of waiting for relief. Two years were tough enough. The story goes on to tell us as we piece it together through reading the accounts in the Gospels that this woman heard about Jesus, sought him out, and pushed through a crowd to touch the hem of His garment.

The energy she expended to get to Jesus demonstrates her faith. 

This was an all or nothing moment for her. Either she was going to meet the Master and find healing or there was nothing left for her. I love that Scripture goes on to tell us that Jesus knew the moment "she" touched Him. He felt power leave Him, and upon seeing her He said, "Take heart, daughter, your faith has made your well (Mt. 9:22)." At that moment, she was well.

In this life, we all face things that are too big for us.

It may not be an illness.  It could be the death of a child or an irreconcilable relationship that makes our hearts ache for heaven.  While our faith in Jesus may not provide the physical relief or the relational healing we hope for (clearly, not every person who has faith is healed or relieved of their difficult circumstances), we will not be disappointed when we leave this world to pursue our Savior.  It's all or nothing.  When we have faith and reach out to Him, Jesus will look at us and say, "Take heart, child, your faith has made you well."

Indeed, it will be well for us.  

Illness, heartache, broken dreams, and shattered realities will be only a vapor as we realize that all we really needed was not the healing we pressed forward for in a moment of desperation. No, what our souls really longed for was Jesus Himself. In Jesus, we, who have nothing to offer, have gained all and lost nothing. Any heartache this world can bring cannot compare with the joy to come.

Indeed, dear believer, it is well for us.

"And behold, a woman who had suffered from a discharge of blood for twelve years came up behind him and touched the fringe of his garment, for she said to herself, “If I only touch his garment, I will be made well.” Jesus turned, and seeing her he said, “Take heart, daughter; your faith has made you well.” And instantly the woman was made well.(Matthew 9:20-22, ESV)"

Monday, June 10, 2013

Removing the Dross

In elementary school, I was introduced to the brilliant idea of extra credit. I loved it. I worked the system like a champ, and I made sure I made perfect scores on every test I took so that the bonus points could build a cushion for my off days. I liked seeing 110/A on tests. I really liked knowing that I would still have a perfect average even if I had a bad day in the future. It was secure, safe, and I was confident that I would be successful in school. I knew from the beginning that I wanted to be the valedictorian, and I knew insulating my grades would help achieve that goal. I was right. It did.

So naturally, as I've matured and grown up in life, that same mentality has shifted into almost every other area of life.  


When we heard about Dave Ramsey, the Christian financial advisor, and his plan to become and stay debt free, we jumped on board. I loved his smart advice, and I loved the financial security of being insulated from any possible emergency or pitfall in the future. I sold out for his plan 100%, started a home business to make it possible, and I leveraged everything to help us become more financially secure.

Enter church planting. It rocked our world. Enter Pax. I became too sick to keep up with the world I had built, and God didn't heal me. Enter confusion. Up until this point, God had provided in miraculous ways to keep us debt free, and for this season, He didn't. Enter anger. I felt that God had abandoned me in my suffering, and I didn't understand why He was not providing for our needs. Enter despair. I knew I was helpless, and I was ashamed that I couldn't keep up with the system ideal I had set for my life.  Enter the Prosperity Gospel. When I tried to find comfort in other Christians, I often heard that God blesses those He loves, and Sin is the reason God withdraws His blessing. Enter struggle. I wrestled with God and myself. I knew we were following God. I knew life was hard. I knew He was my only Hope for peace. I knew I needed Him.

Enter rest.  I'm here.  


It's because of the Word. Scripture redefined my worldview, and I realized suffering was what I needed to purge the false theology that I had made my own. God had to take away the "dross from my heart to make a suitable vessel for His Spirit (Prov. 25:4 paraphrase)." I needed His refining fire to melt away everything that was competing with Him to make His Spirit shine brighter in me than everything else. The process has been painful. I can't say I have enjoyed the journey, but I am thankful that God sometimes withholds His provision for a season to expose our hearts and ultimately lead us to a greater dependency on Him. (There is an incredible sermon about this here that Dr. Russell Moore preached back in 2010 if you'd like to explore this idea more.)

I still love the idea of being debt free so that you are more free to give. I want to be there again with my whole heart. However, it's not an idol for me anymore. If we are never debt free again but are faithfully using our resources for the Kingdom and not merely for our own pleasure, we won't have failed. The funny thing about being married to a pastor is that you usually get to be a living sermon example for whatever he is passionate about. Bryan hates the Prosperity Gospel and the way it has tainted the worldview of the Church.

We are getting to live out that following Jesus doesn't always lead to financial security and prosperity, but it will lead to peace in Christ.




Jesus is worth more than anything.


John Piper teaches, "Purity only comes through the refining fire." (You can listen to that sermon here.) The good news is that the refining fire is ultimately for our good. "Blessed are the pure in heart for they will see God." Matthew 5:8

As John Piper preaches, "What is life like in the refiner's fire? More than anything else it is the unshakeable trust that all the paths of the Lord are steadfast love and faithfulness. And on the path to purity and heaven the truth is this: no pain, no gain. Both things are true: the Lord is like a refiner's fire, and a refiner's fire is a fire."

Dear Christian as you struggle in this world and are beat down by the accusations of those around you who question you and judge you for not being successful on their terms, you may be exactly where God wants you to be. God doesn't care about your worldly success. He cares about His glory and your good. God will refine you until you reflect His Son well.

It is a good thing. He will sustain you. Rest in Jesus.


"For the LORD God is a sun and shield; the LORD bestows favor and honor. No good thing does He withhold from those who walk uprightly." Psalm 84:11

Sunday, June 2, 2013

Much Awaited Answers!

I'm a little slow giving an update on my blog, but we finally made progress in getting some answers for many of the health issues I have had in the past couple of years.  In April, I started seeing a new doctor at Forward Health Solutions in Hattiesburg, and the Friday before last, we received the results of twenty-one tests that had been ordered.

We discovered that my thyroid levels were low, my adrenals were low, and my hormone levels were completely out of whack.  Having a basically nonexistent progesterone level was the explanation for all of the miscarriages I have had.  In fact, it is an absolute miracle that we have Abby and Pax.  Progesterone is essential to sustaining a pregnancy in the first 12 weeks of life, and it's amazing that I did not lose the kids we have with my low levels.  God has been so good to us in ways we never even knew.
Pax and me on Mother's Day at Waffle House
Also, we learned that I am very, very low in iron.  Though we still aren't sure what caused my labs to be so off yet, we do have a plan of action now.  I'll be receiving weekly iron injections in addition to supplements to try to boost everything that is off.  I am very hopeful that I will begin to have a normal energy level again within a few months as we work on adjusting everything to get it just right again.

I am so very thankful that this appointment was productive and helpful.  After hearing so many times that everything was "normal" when I knew everything was not, it is a huge relief to know I will be able to overcome the fatigue I have been battling for so long now.

Abby and me playing flower princesses one morning in May
As for my diet, I tried eating Paleo last month to see if it would help at all, but honestly, I'm just more of a fan of eating gluten free clean cuisine style.  It works better for my family, and I feel better with that diet specifically.  However, I did learn some great Paleo recipes that I will continue incorporating into our diet in the future.

It's my hope as my energy returns again that I will be able to blog more again in the future.

For now, I am so grateful to be on the right path to feeling good and am so thankful that God directed us where we needed to go to get some answers that we needed very much.

‘My grace is sufficient for you, for My power is made perfect in weakness.’ Therefore I will boast all the more gladly of my weaknesses, so that the power of Christ may rest upon me.” (2 Corinthians 12:9)

Wednesday, May 1, 2013

Bucking the System


Once again, I've dropped off the blog radar for a period of time, because life has been unpredictable here. I've been struggling with a host of GI issues since I became pregnant with Pax, but switching to a strict gluten free diet has pretty much eliminated all of those symptoms. Praise God! That is a huge step forward for my health.

However, though I have not talked about it as much, I am still battling a chronic fatigue that comes and goes like a beast.  


When I say it's fatigue, I don't mean a tiredness that is normal from being a mom of two little ones. It's a weariness that knocks me on my back and makes me too exhausted to be able to sit up in a chair for long periods of time. It's frustrating. It's discouraging. It's humbling.


I haven't talked about it much except with close friends and family, because I did not want to deal with other peoples' opinions and their labels on top of this illness.  


It's not depression, though I wish it could be fixed with a pill.  It's not laziness, because I am too type A to be lazy for longer than an hour.  (Anyone who knows me just smirked at that comment.)  It's not predictable.  I went for a few weeks without a single episode and thought it was gone, but then it returned this week and had me down for two days.  I hate it.

This past week I started seeing a new doctor that specializes in integrative medicine.  I'm really hopeful that she will be able to give us direction in how to help me heal or at least deal with this better.  I'm starting a Paleo diet this month per her recommendation.  My doctor is ordering more tests to try to help us figure out exactly what this fatigue is and why I keep miscarrying.  Chances are they are connected.

Why blog about all of this now after I have kept it mostly private for two years?  


Well, I realized something this morning.  I love to blog.  It's my way of sharing what God is doing through my life. However, I've really felt like I did not fit the correct "blogger format" for a while.  You see, most blogs go something like this. A blogger shares their story about how something isn't going well... They may be in debt or are overweight or are sick. Then, the blog turns around as they share how they worked themselves out of debt, learned how to become fit, or figured out the secret of how they could become well. You get the picture.

My blog obviously doesn't fit into any of those categories. I don't have life figured out. I'm not debt free anymore. I'm not perfectly fit. I am certainly not a postcard picture of health. In my head, I subconsciously felt like I did not have the right to blog while I have so many unanswered questions... while I am vulnerable to criticism or opinions.


I'm bucking the system.  I am going to keep writing my story.  


I am going to pick up blogging again not for you but for me. Testifying about God's presence and faithfulness in this chaotic mess is my worship to God. I don't have all of the answers, and I probably never will.


In the end, maybe what all of us need is not another blog sharing about how they have it altogether but about a God who came down into this world and turned it upside down with His Son Jesus.

 

Life isn't neat. It can't be filed away in color coded categories. Sometimes, the good and the bad are just a blended up crazy mess that simply point to our need for a Savior and that help us long for a perfect place to go to one day.


Welcome to my blog. The good, the bad, the ugly. May we be transparent enough in our journeys to show people that Jesus is the One who holds us together and that we are a living testimony of His grace. In the end, Jesus is the One who satisfies... not a perfect bank account, not a rocking hard body, or an A plus on our medical report. May we strive together to show people Jesus is enough.


Jesus is enough for me.


Thanks for coming along this journey with me.

Ephesians 2:19-22 The Message

That’s plain enough, isn’t it? You’re no longer wandering exiles. This kingdom of faith is now your home country. You’re no longer strangers or outsiders. You belong here, with as much right to the name Christian as anyone. God is building a home. He’s using us all—irrespective of how we got here—in what he is building. He used the apostles and prophets for the foundation. Now he’s using you, fitting you in brick by brick, stone by stone, with Christ Jesus as the cornerstone that holds all the parts together. We see it taking shape day after day—a holy temple built by God, all of us built into it, a temple in which God is quite at home.

Saturday, March 16, 2013

Learning to Move On

Well, this blog post is long overdue.  I have wanted to check in again for a while, but I just didn't know what to write.  Free time has been scarce.  About every virus in the county has visited our house in the past few months, and either the kids or I or both have been down.  It's not been a fun season.

Since January, I've been on the low fodmap diet per my GI dr's orders.  While it helped to resolve some of the GI issues I was having, it did not eliminate them, and it completely zapped my energy.  I went to a dietician to try to make sure that I was getting enough nutrition on it and learned that I knew more about the diet than she did.  Fast forward to March, I decided I couldn't manage my blood sugar well enough on the low fodmap, and I decided to just go strictly gluten free again.  Two weeks later, my GI symptoms have been almost erased, and I am starting to have more energy again with less down days.

Two years of medical treatment later and random diagnoses have landed me in the same spot I began this journey on.  I must be gluten intolerant.  I don't need a test to tell me what I already know from experience.  Any time I eat something with gluten in it.  I get sick.  Really sick.  So sick that it knocks me on my back for a few days like the flu.  My tummy bloats like I am pregnant.  I get brain fog that dumbs me down.  It's nasty stuff.

Honestly, I feel kind of jaded and frustrated with the medical community at this point.  While gluten intolerance is a legitimate medical diagnosis, very few seems to know about it in my area.  Because I was afraid of following a strict diet for relief that was "all in my head," I gave up on it, and I have spent the past year off it much sicker than I needed to be.  I can't blame them entirely.  I'm at fault too.

I was gluten free for almost my entire pregnancy with Pax, because it was the only thing that helped me survive the GI symptoms that I had.  Eating gluten meant throwing up thirty or more times a day.  Not eating gluten meant retaining my calories.  It only took a couple of doctors doubting that I had gluten intolerance to give me the excuse to eat freely again, because it is so much cheaper to eat "normal."  Instead of being strong enough to be my own advocate, I caved to their opinions, and it's made life tougher than it needed to be.  Heck, I have huge blocks of time that I simply don't remember, because I was just existing- not living.

I'm moving on.  I know gluten and I will never be friends again.  I hate that I had to take such a long journey to get here, but I'm here.  I really dislike that I will have to check the label of anything that goes in my mouth from this point on, and I really, really hate that I am going to be the kind of dinner guest that is impossible to cook for.  However, this is my life.  Denial won't make my health return.



Hello, my name is Anna.  I have gluten intolerance.  My life is not over.  It's really just beginning.  Apparently, this is part of the story God wants me to tell.

What are you in denial over?  What secret struggle do you have that you've let rest for far too long without dealing with it?  What do you avoid because you know the cost is high and the road is uncomfortable or awkward?  It may not be an illness.  It may be an addiction.  If it is ruining your life and moving you off the mission of loving and serving Jesus well, it's time to deal with it by God's grace.

Let's move forward together and just accept the story God has written for us.  In the end, we're not just telling our story.  All of our stories are simply weaving together to tell His... a story about a God who generously loves, redeems, and equips a broken, helpless people and makes them into something new for His name's sake... a perfect bride for His Son Jesus.

Will you take the risk with me?  Let's move forward for the sake of Christ.  Our time here is short.  Let's make the most of this life.

"28 And we know that for those who love God all things work together for good,[a] for those who are called according to his purpose. 29 For those whom he foreknew he also predestined to be conformed to the image of his Son, in order that he might be the firstborn among many brothers. 30 And those whom he predestined he also called, and those whom he called he also justified, and those whom he justified he also glorified." Romans 8:28-30

"For we are his workmanship, created in Christ Jesus for good works, which God prepared beforehand, that we should walk in them." Ephesians 2:10

Sunday, December 2, 2012

My Journey with Chronic Pain

My tummy hurts.  A lot.  I'm over it.

I try not to complain.  I try not to have a bad attitude about it.

But, I'm really ready for relief.

My stomach has pretty much ached nonstop for over a year and a half now.

Nights are the worst.

I am tired.

Best I can remember, it started a few months before my pregnancy with Pax, and I told myself back then it would go away after Pax's birth.  Fast forward to three months post Pax's birth, I'm still hurting, so a surgeon removes my gallbladder.  Thankfully, it stopped the terrible attacks that I was having every night, but the ache never went away completely.  My little guy is 8 months old now.

Some days, I hurt a little, and the pain is nothing more than an annoying nag.  Other days, it lays me on my bathroom floor in a crumpled heap, and I cry in frustration because I hate being unable to take care of my family as well as I want to.  Chronic pain stinks.

I've been poked test after test about a billion times now (ok, maybe that's a little dramatic)... it's only been a million times.  I'm a bizarre health freak of a person when I eat.  I watch fat grams like an anorexic, and so far, no medicine has erased the discomfort.  Only a hard jog or a heating pad seem to bring any relief.   Weird.  I've lost so much weight that most of my pants sag in my seat, and most of my shirts hang some kind of crazy loose on my frame.  Not cool.

My conversations with doctors have gone like this.

Generic Doctor: What are your symptoms?

I name every GI symptom imaginable.

Generic Doctor: What causes your symptoms?

Living.

Generic Doctor: What makes it better?

Blank stare.

Generic Doctor:  Do you think it is just gas?

Are you serious?  I've had two babies!!!  I'm not a wimp.

Generic Doctor: I'll order some blood tests.  Let's do a scope.

So... great.  More tests.  More medical bills.  No answers yet.

But, tomorrow is the day.  I'm scheduled for an EGD (Esophagogastroduodenoscopy).  Fun stuff.

I know.  I'm being sarcastic.  I'm borderline complaining about it all.  It's hard not to complain a little.  Being physically handicapped for almost two years is frustrating.

Maybe you're struggling with chronic pain or know someone else who is.   I want to share with you what I have learned.

Chronic pain does take its toll on you and those around you.  Pretending it's not difficult is just living in denial.  It is hard for everyone involved.  It's humbling and frustrating for the person experiencing it, and it is exhausting and annoying for those who love them and want to support them well.

I've learned that I must live life now.  I'm only guaranteed now.  Not tomorrow.  I've learned that life must continue, even when I don't feel amazing, and God's grace is enough to keep me going.  The tummy ache may stop one day, and it may continue until I die at the ripe old age of 98.  Who knows what the future will hold?  Only God.  Not me.

I've learned that I must, I mean absolutely must, spend time with Jesus every day.  I need His Spirit to help me to love others when all I want to do is think about me.  Reading His Word fills my soul with peace and fuels me to serve out of His overflow when I only feel empty.  On my bad days, God usually feels a thousand miles away, and I need Scripture to remind me of His truths like God's love never changes and that God's power is made perfect in weakness.

I've learned to invest in my family's lives and to invest in others out of obedience to Christ- how I feel is too fickle and fleeting.  I've learned that I can still be faithful to make disciples of others, even when I feel less than ideal.  Sometimes, the days when I feel the worst are the very days I have seen God use me to most effectively reflect His goodness and glory.  That's pretty incredible stuff.  God is so good to use us, even at our worst.  

I've learned to simplify my life, my schedules, and re-shift my priorities to get rid of the excess that I never really needed anyway.  God gives us the grace we need to live out each day, and if we are totally maxed out EVERY day before we go to bed, maybe we are living our lives outside of His grace and are doing more than He has asked us to do.

I've learned to be flexible and to rest when needed.  I'm a type A, check off my list, and never budge from my schedule kind of person, and my chronic illness isn't considerate of my plans.  Bad days come and go unexpectedly, and I've had to learn to allow life to ebb and flow around them.  I've also surrounded myself with flexible people that understand when I have to cancel or postpone dates last minute.  There's a saying I like to tell myself, "Those that matter don't mind and those that mind don't matter."  People who truly care about me know that I am responsible and care about them too but that being chronically ill sometimes comes at inconvenient times.  In a way, a chronic illness can help weed out shallow relationships.  Fair weather friends are really not great friends at all.

Tomorrow, I'd appreciate prayers. 

After almost two years of not being "normal" anymore, I am ready to have a diagnosis and a plan of treatment.  Pray that the EGD is helpful and that the anesthesia doesn't completely kick my tail.  Pray that the procedure goes well and that the medical team that will be performing it is skilled and kind.  I have a history of debilitating nausea and vomiting following any anesthesia at all, and I am pretty much dreading tomorrow in every way.  Please pray that the anesthesiologist is able to help me control the unpleasant post-op symptoms and that I can leave the recovery area at a reasonable time.  Pray that God would give grace to my family as they cope with me being out for the day.

Thank you.  I believe that God is powerful and a healer.  Prayer matters.  Thank you for joining in my journey.

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